Four-year-old Nini Ogunbameru from Openshaw, Manchester was starved of oxygen at birth and fought for her life in intensive care for three weeks. At seven months she was diagnosed with cerebral palsy and is unable to stand without support, talk or walk.
Mum Omalara, 36, said: ‘She loves playing in water, watching football and going out in her specialised wheelchair. We are trying to raise £80,000 for Selective Dorsal Rhizotomy and physiotherapy both before and after the operation. The operation would reduce spasticity, increase her walking patterns and other range of motion, as well as being able to take on self-care tasks such as getting dressed.’
The family are waiting to find out from Alder Hey Hospital whether Nini will be eligible for NHS surgery (not all children with the condition are), but will still need to raise several thousand for physiotherapy and equipment either way.
Nini, Omalara, Dad Orajide, 39 and 16-month old sister Teniola will be taking part in the Superheroes Series, Find Your Power Challenge, walking in their local park.
The Find your Power Challenge is a countrywide disability sports event which encourages people to set their own challenges – from 100 metres to 1,000 km or more – and complete them however they want, when they want, between May 29 and June 5. The event is usually a mass participation event taking place at Dorney Lake in Windsor, one of the main sites featured in the 2012 London Olympics. However, it is continuing its ‘At Home’ theme for a second year, due to the pandemic.
Omalara added: ‘We are seeking your financial support to make this dream a reality for Nini. We would like to say a very big thank you from the bottom of our hearts as you donate towards this cause.’
The family is supported by children’s charity Tree of Hope who are also a named charity partner of the Marvel Superhero Series for a third year running, helps families fundraise for children like Nini with healthcare needs and provides charity status to benefit from gift aid, corporate support whilst also providing donor reassurance.
Tree of Hope CEO Gill Gibb said: ‘We are delighted to be supporting Nini and her family in their fundraising and wish them all the best in their continued fundraising.’
To donate to Nini’s fund, visit https://www.treeofhope.org.uk/nini-longs-to-walk-for-the-first-time/